I lost my wife to Alzheimer’s when she was just 39 years old
When Steve Boryszczuk’s beloved wife, and mother to their two children, was diagnosed with Alzheimer’s disease at 39 he knew their life would change forever.
Michelle, now 43, is believed to be one of the youngest sufferers of the disease in the UK. We helped him share his wife’s courageous diaries with a number of national newspapers, including the Daily Mail.
Steve, a lorry driver, wanted to speak about the devastation the disease has caused on his family and how he’s still trying to forgive himself for making the difficult decision to put Michelle in a care home. The couple, who have been married for 27 years, used to love holidaying together and lead an active life – but now Michelle is bedbound and incontinent – and unable to do simple things for herself.
Although Michelle’s father died from Alzheimer’s aged 46, growing up, Michelle never imagined she’d be struck down by the neurological disease so young. But at 28, tests revealed Michelle was carrying the same gene as her father and developing Alzheimer’s young seemed inevitable.
Although the news was damming, Michelle had two sons to raise so tried her best not to let her fears take over her life. But in 2008, when Michelle turned 38, she started showing signs of the disease.
Steve says simple tasks became too much for her like driving and picking up shopping. She’d forget to look at crossroads and wait at traffic lights. She quickly became a danger to herself and others.
Steve began to notice significant changes in her personality – she went from being a care-free woman who loved gardening to a lethargic shell of her former self. The couple used to love holidaying, dining out and going on walks with their dogs but that became almost impossible when Michelle’s condition deteriorated.
Although Steve quit his job as a lorry driver to be Michelle’s full-time carer, after four years he couldn’t cope and so made the agonising decision to put Michelle in a care home in November 2011.
To this day, he spends 12 hours a day at her bedside and prays she knows who he is. Steve is now fundraising for the Alzheimer’s Society and will be taking part in the Great Wall of China Trek in October, walking alongside his brother Stanley.
‘People think Alzheimer’s only affects the elderly, so I am sharing Michelle’s story to help raise awareness for young sufferers too,’ says Steve. ‘I miss my wife every day but I have to accept she is gone. I’m learning to live all over again.’